Inter/Act – supporting young people with DSD/Intersex conditions

Feminist Conversations is a regular series here at Feminists For Choice. Today we are talking to Jim Bruce, Communications and Youth Coordinator for Advocates for Informed Choice, about the program Inter/Act. Inter/Act is the first intersex youth leadership development program in the world and is a project of Advocates for Informed Choice. Inter/Act encourages young people with DSD or intersex conditions to share their opinions and experiences.

1. Tell our readers a little bit about Advocates for Informed Choice and Inter/Act.

Advocates for Informed Choice (AIC) is the first, and only, organization in the U.S. to undertake a coordinated strategy of legal advocacy for the rights of children with intersex conditions or DSDs (differences of sex development). AIC uses innovative legal strategies to advocate for the civil rights of children born with variations ofreproductive or sexual anatomy. Our project engages parents, doctors, attorneys and intersex activists in strategy discussions; stimulates legal dialogue about the fundamental rights of children born with intersex conditions or DSDs; and employs traditional and non-traditional legal tools to ensure justice for children born with intersex conditions or DSDs. These activities are grounded in a sense of respect and compassion for the children, parents, doctors, and intersex adults involved.

Inter/Act is the first intersex youth leadership development program created exclusively to facilitate tomorrow’s intersex advocates. Inter/Act is a place for young people with intersex conditions or DSDs the world over to come together, express themselves, and unite their individual stories to develop a voice for a new generation. Inter/Act’s goal is for peers, parents, doctors, scholars, and supporters to gain a better understanding of the varied experiences and perspectives of young people with different bodies. Inter/Act’s blog presents the unique voices of members in the Inter/Act community. Inter/Act welcomes young people with intersex conditions/DSDs no matter how they identify.

2. How important is it for people with DSDs or intersex conditions to represent themselves?

The right to self-determination and bodily autonomy has always been a political goal of the intersex community. The progress made toward winning these rights is largely a result of brave intersex individuals being public, speaking up and demanding accountability from caregivers, policymakers and other intersex activists. More to the point no matter how someone born with an intersex condition identifies it is vital that parents of children with intersex conditions see intersex adults taking responsibility for their own lives.

3. Do you think information about DSDs/Intersex conditions should be part of sexual education? (For example, I rarely heard of DSDs/Intersex in college classes I took that discussed sexuality).

I was educated in the Louisiana public school system. I sat through the menstrual cycle film (flummoxed) with other girls in my 4th grade class. It wasn’t until the 8th grade, in a personal hygiene class, that we learned one of the harmful effects of marijuana usage is that one could give birth to a kid born with ambiguous genitals. Jump to my Human Sexuality class in college when intersex people were discussed and suffice to say more attention was given to which celebrities “were” or “were not.”

What would be revolutionary is telling students in sex education classes the truth. The groupings “XX, female, ovaries, uterus, vagina” and “XY, male, testes, penis” is just not accurate. It ain’t necessarily so. This is why when Advocates for Informed Choice gives presentations to almost any audience we always begin with “Everything You Learned In Sex Ed. Was Wrong.”

4. I recently read a guide for parents and physicians on DSD that stated: “One of the most important goals in developing a treatment plan for newborns with DSD is to have a child develop a gender identity that matches their upbringing” (Wisniewski et al. Disorders of Sex Development: A Guide for Parents and Physicians p. 50). What do you think about this statement?

We think that the most important goal in developing a treatment plan should be raising a healthy child who feels safe, loved, and accepted regardless of gender identity. Certainly, it is ideal when caregivers can correctly predict the child’s gender identity, but the reality is that some children with intersex conditions will not grow up as predicted. Caregivers need to be prepared to support the child regardless.

5. In regards to reproductive rights and issues, what would you like to see happen for people with DSD and intersex conditions in the future?

AIC’s goal has always been to protect the civil rights of kids born with variations sex anatomy and their families. AIC would like to see sterilization law be enforced to protect intersex kids, and we know that governments and international organizations are beginning to recognize normalizing surgeries and hormonal regimens on intersex kids as a human rights issue. AIC aims to see hospital policies put in place which protect the kids (from physical harm, unnecessary cosmetic surgeries, preserving their ability to choose for themselves in the future), the parents (fully informed consent, medical privacy, awareness of all of their rights as guardians in and out of the examination room) and the caregivers (the consequences of sterilizing a healthy child and reduce exposure to liability).

Personally, I want to see the intersex/DSD/variations of sex anatomy/AIS/PAIS/Hypospadias/CAH/MRKH (and more!) community to remember how much we still have in common, how we are too small of a group to be as splintered as we have been in the past and that while it isn’t necessary to speak with one voice it is vital each one be heard.

Comments

  1. I think for AIC to be the voice for intersex/DSD people. too often, intersex groups and intersex people are often hidden and invisible. Which is why groups like AIC are doing all they can to help intersex/DSD people.

  2. Way to go Jim! And w00t Inter/Act!

    we rock :)

    -pidgeon
    inter/act contributor

  3. I can’t thank you enough, Jim, for your pitch to all of us in the collective community to work together! We are so much stronger when we are united.

    Amy

  4. Kimberly Z says:

    Jim,
    Well said! (And cute photo btw.) AIC and Inter/Act have it right, can’t thank you enough for providing a voice for so many of us!
    XOXY
    Kimberly

  5. Jim …. Unsurprisingly GREAT words!!! As always you have our support. No geographical divisions; unity for one cause. Thank you. Holly and the team – Intersexuk.

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